Epilepsy

4 Things I Do To Stay Seizure Safe

Safety is so important. Especially if you’re living with a chronic illness like epilepsy. You should always be prepared. Although my seizures are fairly controlled, I still put safety first.

Here are some strategies I do to stay seizure safe:

Using apps to log seizures

I found an app called “Epsy.” It’s free on iPhone and Android. What I love about this app is the various sections to log information. The app allows users to log seizures, auras, triggers, medications, side effects and also set-up medication reminders.

Being able to organize and store all of my information about my epilepsy in one app is amazing.

Wearing an epilepsy bracelet

Years ago, I purchased a bracelet that indicated I had seizures. I normally travel with my spouse or family member but should we ever get separated, it’s a good idea to have something to alert anyone nearby should I have a seizure and may be nonresponsive.

I looked on Amazon and Etsy. There are many different styles (especially on Etsy) available.

Using iPhones’ Medical ID to log epilepsy information

Should I have a seizure and am nonresponsive, paramedics and emergency personnel are able to access my medical ID from the phone. The contents of the Medical ID include name, age, medical condition(s), medications, and emergency contact(s).

How to set up your Medical ID:

  1. Open the Health app and tap the “Summary” tab.
  2. Tap your profile picture in the upper-right corner.
  3. Under “Medical Details”, tap “Medical ID”.
  4. Tap “Edit” in the upper-right corner.
  5. To make your Medical ID available from the lock screen on your iPhone, turn on “Show When Locked”. In an emergency, this gives information to people who want to help.
  6. Enter health information like your date of birth, medical condition, and emergency contact(s).
  7. Tap “Done”.

How to access Medical ID from the phone lock screen:

  1. Press the power button to access the lock screen. Then swipe up from the bottom of the screen.
  2. Tap on the “Emergency” option located in the lower left corner.
  3. When the “Emergency Call” keypad appears on your screen, tap on the Medical ID option in the bottom-left corner.

That will reveal the necessary medical details.

Sharing epilepsy diagnosis with others

I’m not suggesting that you reveal every little detail about your epilepsy diagnosis but your safety is extremely important. Informing others on what to do in the event of a seizure can be helpful for both them and you.

Are there any other seizure precautions you take?

Tiffany Kairos

I am a happily-ever-after wife, an epilepsy diagnosee, advocate for epilepsy awareness (The Epilepsy Network), life lover & Christ inspired! Life is a journey and I'm loving every moment of it. Even the bumps in the road!

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