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    Understanding Brain Fog And Epilepsy

    August 31, 2020 / 3 Comments

    Speaking candidly, alongside seizures, brain fog is one of the most difficult – and sometimes exhausting – parts of living with epilepsy. What does brain fog feel like? Brain fog…

    By Tiffany Kairos

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About Me

Tiffany Kairos

Hi there! I'm an epilepsy patient advocate, blogger, content creator and the founder of The Epilepsy Network (TEN). Within this blog I talk about my experience with epilepsy, also providing tips, encouragement and motivation to live your best life while navigating epilepsy.

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Take this ingredient! 🥣 Fighting epilepsy or a Take this ingredient! 🥣 Fighting epilepsy or any chronic illness, means putting your needs first. This isn’t selfish, rude or cold. It’s thinking smart to stay safe. If you have to: ⚡️Cancel plans ⚡️Ask for help ⚡️Leave an event early Don’t feel bad. Listen to what your body is telling you. I consider me to be a selfless person and it took a while to understand this. You can STILL be that selfless person…but also do what you need to do when you need to do it for health’s sake. 🫶🏻 Double tap if you agree and share with another warrior! 👏🏼 . . #epilepsy #epilepsyawareness #fearlesslyfightingepilepsy #chronicillness #epilepsycommunity #invisibleillness #spooniesupport #spooniecommunity #spooniesisterhood #raiseawarenessofepilepsy#tiffanytalksepilepsy #spooniestrong
Go ahead 🔥 Let’s talk about the realities in Go ahead 🔥 Let’s talk about the realities in “staying home” while living with a chronic illness. Sometimes people consider we’ve obtained ourselves a luxury staying at home, not having to work or go to school. When I was diagnosed with epilepsy, I could no longer drive. I was (and still am) reliant upon others for transportation. I don’t get out as often as I would like so I spend a majority of time at home which can cause me to get a little stir-crazy if I don’t shift my focus away from that fact and onto activities I enjoy like my advocacy work, fitness, journaling, arts and crafts, etc. Time spent OUTSIDE home is a luxury to me. Even if it’s to sometimes purchase groceries. 🍓 Those of us who live with epilepsy are limited in our travel and transportation. Part of time spent at home is also for recovery from a seizure which can be overwhelming and difficult. As nice as it is, it can also be tough because we do want to have the freedom to come and go as we please but it’s not always so easy. Don’t chalk it up to a “luxury”. Drop an emoji of a favorite at-home activity you enjoy! 👇🏼 I love talking to YOU - my warriors! 💻 Tag a friend and share in your stories! 🫶🏻 . . #chronicillnessadvocate #chronicillnessawareness #epilepsyawareness #endepilepsy #1in26 #cureepilepsy #patientleader #patientadvocate #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport #epilepsyawarenessmonth #spooniesisterhood #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel
Calling all my epilepsy warriors! 👏🏼 #epile Calling all my epilepsy warriors! 👏🏼 #epilepsyawarenessmonth may be wrapping up but I’m not hitting the breaks! Everyday you can…👇🏼 ⚡️Spread awareness ⚡️Share your story ⚡️Support another’s condition ⚡️Raise funds for better prevention, treatments and to find a cure ⚡️ Share what you’re passionate about, and what’s on your heart and mind! Hopefully this empowers you, my warriors to speak up and speak out in whatever manner compels you! If you haven’t yet heard it, or spoken it to yourself, I’m so very proud of you! 🙌🏼 Tag an epilepsy warrior and share this in your stories! 🫶🏻 . . #epilepsy #epilepsyawareness #fearlesslyfightingepilepsy #chronicillness #chronicillnessadvocate #epilepsycommunity #invisibleillness #spooniesupport #spooniecommunity #spooniesisterhood #raiseawarenessofepilepsy#tiffanytalksepilepsy #spooniestrong #epilepsyawarenessmonth
Is this real life?! 👀 We live with an unpredic Is this real life?! 👀 We live with an unpredictable neurological condition called epilepsy. Seizures happen whenever and wherever they please. Not only does it impact us physically but emotionally and mentally too. It can sometimes be stressful and frustrating. If you’ve ever been told not to think about it, talk about another ingredient of frustration. How can you NOT think about it? Also, that’s also suggesting we tuck away our feelings. This is actually terrible advice. Helpful advice would to encourage us to: ⚡️ Talk about how we’re feeling openly ⚡️ Reach out to others within the community ⚡️Keep a journal ⚡️Cry, or punch a pillow if we need. But never ever give up What other helpful advice would you recommend? Hit the bookmark button and share with another warrior! 🫶🏻 . . #chronicillnessadvocate #chronicillnessawareness #epilepsyawareness #endepilepsy #1in26 #cureepilepsy #patientleader #patientadvocate #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport #epilepsyawarenessmonth #spooniesisterhood #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel
How about YOU? 👀 Living with epilepsy is tough How about YOU? 👀 Living with epilepsy is tough! That’s why having an epilepsy survival kit is so helpful in coping with the challenges we face and managing seizures when they unexpectedly occur. 3 of my favorite survival kit items are: 📖 A good book to read. Take for instance this outstanding memoir written by a dear friend and fellow chronic illness warrior Marisa Zeppieri titled “Chronically Fabulous”. Visit her page @lupuschickofficial to get yourself a copy! 🧊ReLeafPack. One thing some people might not know about epilepsy is that we do experience pain. I’m referring to head pressure before seizures and intense migraines after a seizure. Our brains have just been rocked. @releafpack is gently weighted and helps to soothe away the pain without any condensation and stays cold for up to 2 hours! I mean…WOW right?! It is a miracle worker! Everyone needs at least one! Visit their page and get yours! Use my promo code “TIFFANY” to save 20% at checkout! 😴 A comfy sleep mask. After a seizure, all I want to do is sleep. These help block out all of the light so I can fall asleep and stay asleep. @amazon has a lot of good options! What are your 3 favorites? Comment an emoji! Don’t forget to share this to your stories and save for later! 🫶🏻 . . #chronicillnessadvocate #chronicillnessawareness #epilepsyawareness #endepilepsy #1in26 #cureepilepsy #patientleader #patientadvocate #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport #epilepsyawarenessmonth #spooniesisterhood #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel
Wouldn’t you agree? 👏🏼 November is Epilep Wouldn’t you agree? 👏🏼 November is Epilepsy Awareness Month. These 30 days are designated to spotlighting epilepsy, raising awareness and telling our stories. But ALL of these actions are not compacted into 30 days alone. Epilepsy doesn’t give those of us living with epilepsy a break. There are no days off. No vacation times. We battle seizures and symptoms, emotional struggles and other difficulties 24 hours a day, 7 days a week, 365 days a year. Epilepsy awareness is NOT just November. It’s: 👉🏼 January 👉🏼 February 👉🏼 March 👉🏼 April 👉🏼 May 👉🏼 June 👉🏼 July 👉🏼 August 👉🏼 September 👉🏼 October 👉🏼 November and… 👉🏼 December Our seizures are uncontrollable and unpredictable. Unravelling our plans and depleting us of energy. Some people still to this day mock, bully, unintentionally expose those with certain triggers and stand completely unaware. 65 million people worldwide live with epilepsy. It can happen to anyone. People may wake up feeling just fine to have the rug pulled out from beneath. I did. It’s that quick. Until a cure is found, we will continue to talk about it, write about it, and post about it. 👏🏼❤️‍🔥 Epilepsy awareness doesn’t end until epilepsy ends. ✊🏼⚡️ Tag a warrior who needs to see this and share to your stories! 🫶🏻 . . #chronicillnessadvocate #chronicillnessawareness #epilepsyawareness #endepilepsy #1in26 #cureepilepsy #patientleader #patientadvocate #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport #epilepsyawarenessmonth #spooniesisterhood #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel
I didn’t know this! 🤯 Did you know that the I didn’t know this! 🤯 Did you know that the Greek philosopher Hippocrates was the FIRST person to believe epilepsy began in the brain? Beforehand and still in some areas of the world today, some don’t see it that way. They see it as demon possession. I’m always studying about this illness that impacts me and the other 65 million others globally and am learning something. There wasn’t a WORD for our illness until the Greeks created one. This is the root word of “EPILEPSY”. Did you know this? I mean talk about WOW, right?! 😧 Tap the follow button to get even more awareness content and share with a fellow epilepsy warrior! 🫶🏻🧠 . . #epilepsy #epilepsyawareness #fearlesslyfightingepilepsy #chronicillness #chronicillnessadvocate #epilepsycommunity #invisibleillness #spooniesupport #spooniecommunity #spooniesisterhood #raiseawarenessofepilepsy#tiffanytalksepilepsy #spooniestrong #epilepsyawarenessmonth #themoreyouknow
Do you feel the same? 🥹 I’ve lost count of h Do you feel the same? 🥹 I’ve lost count of how many times I’ve been told “You don’t look sick!”…and on more than one occasion I’ve been misjudged for participating in activities that I enjoy because I “don’t look sick”. This is a big issue for many of us living with epilepsy and other chronic illnesses. They’re invisible. On the outside, we might appear perfectly healthy even though we’re battling several internal issues. I enjoy having fun and doing what I love when my epilepsy cuts me some slack. I like to swap pjs for a nice outfit. But those who just don’t seem to understand the struggle I and others with epilepsy face should spend a day with us. See what a day in the life looks like: ⚡️ Taking medication multiple times ⚡️ Stopping at random moments to let a seizure pass (praying that it won’t turn into a grand mal seizure) ⚡️ Having to cancel plans because you’re recovering from a seizure (hoping others will understand, feeling bummed and a bit guilty) ⚡️ Feeling cooped up at home (when some feel it must be so nice to get to be at home all day) And the list goes on… We’re not being over dramatic, rude or flakes. We’re battling epilepsy. Others can’t always tell but we appreciate being believed, respected and supported. Tag an epilepsy warrior and share this to your story! 🫶🏻 . . #chronicillnessadvocate #chronicillnessawareness #epilepsyawareness #endepilepsy #1in26 #cureepilepsy #patientleader #patientadvocate #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport #epilepsyawarenessmonth #spooniesisterhood #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel
If I’m being honest… 👀 When someone asks m If I’m being honest… 👀 When someone asks me how I’m doing, I don’t always know how I want to respond. If I lie or minimize my true feelings to avoid unwanted responses, I’m not giving myself permission to feel. When asked how we’re feeling, without second thought we need to express ourselves in a real way with others and with ourselves. Epilepsy is tough. It’s unpredictable. Recovery from a seizure is like run a marathon you didn’t sign up for. It’s exhausting. And it isn’t just physically taxing. It’s emotionally and mentally taxing too. Next time you’re asked, try out these responses: ⚡️I’m hanging in there ⚡️ I’m doing as well as expected ⚡️ I’m doing the best I can ⚡️ I’m getting by ⚡️ It’s been hard lately You’re not looking for pity or being over dramatic, you’re being authentic. What response would you add to the above list? Tag an epilepsy warrior who needs to see this and save this for yourself! 🫶🏻 . . #epilepsy #epilepsyawareness #fearlesslyfightingepilepsy #chronicillness #chronicillnessadvocate #epilepsycommunity #invisibleillness #spooniesupport #spooniecommunity #spooniesisterhood #raiseawarenessofepilepsy#tiffanytalksepilepsy #spooniestrong #epilepsyawarenessmonth
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This blog is not here to replace medical advice from trained professionals.

Please seek medical advice.

This blog serves to offer my personal experience with epilepsy, what has worked for me, encouragement and support.

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