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    How I Upcycle Epilepsy in My Life

    May 28, 2020 / No Comments

    “If you give up, you’ll have an attitude of resignation, of defeat that will affect—and infect—the rest of your life. Acceptance is empowering because it’s a choice you’ve made. Even…

    By Tiffany Kairos
  • Motherhood

    Epilepsy and the Dream of Motherhood

    May 9, 2020 / 4 Comments

    I’d always wanted to be a mother. At the age of nine on my birthday, I didn’t ask for barbies or make-up. I didn’t ask for glittery toys, no. Instead…

    By Tiffany Kairos
  • Woman in a wheat field

    10 Things to Remember When Epilepsy Walks Into Your Life

    April 1, 2020 / No Comments

    When epilepsy walks into your life, it’s as if a tornado has unexpectedly tossed about your entire life and you’re left to pick up the pieces and rebuild. For some,…

    By Tiffany Kairos
  • Coronavirus

    How I Navigate My Epilepsy Self-Care During Coronavirus

    March 27, 2020 / 2 Comments

    Self-care is an important component of all-around wellness when you have a chronic illness. For example, epilepsy. But suppose an unanticipated situation shakes up your everyday self-care routine. How do…

    By Tiffany Kairos
  • Person being angry

    5 Things Not to Be Angry At Living with Epilepsy

    March 4, 2020 / 1 Comment

    Becoming diagnosed with epilepsy is a life-altering event. Epilepsy does not care your age, your race or time within your life. This condition can happen to anyone. Some are welcomed…

    By Tiffany Kairos
  • Don’t Feel Sorry For Me Because I Have Epilepsy

    February 7, 2020 / 2 Comments

    It’s never easy when someone that you know or someone that you love has just been diagnosed with a chronic illness. What can you say to show that you care…

    By Tiffany Kairos
  • How I Practice Self-Renewal While Living With Epilepsy

    February 3, 2020 / No Comments

    What is self-renewal? In reflecting on this, it’s looking at life anew, or maybe even sewing the seeds of things that you’ve been meaning to do for a while. Self-renewal…

    By Tiffany Kairos
  • What Epilepsy Reminds Me

    January 29, 2020 / 3 Comments

    Over a decade. It has been a long journey and within this journey, I have learned so much, experienced so much, wrestled so many emotions, have had the opportunity to…

    By Tiffany Kairos
  • 6 Ugly Sides of Epilepsy Most People Don’t Like Talking About

    January 7, 2020 / 6 Comments

    It’s no secret that having a chronic illness sucks. There are sides to having epilepsy that are ugly or not well studied, and many people don’t know about them at…

    By Tiffany Kairos
  • Survival kit

    8 Essentials In My Epilepsy Survival Kit

    December 12, 2019 / No Comments

    Living with epilepsy can be taxing not only on the body but also the mind and spirit. Finding the right things to make the journey less rigorous is therapeutic. What…

    By Tiffany Kairos
  • Memory

    5 Ways I Improve My Memory While Living With Epilepsy

    October 8, 2019 / 2 Comments

    “Memory loss is like system reboot.” Memory hindrances. A topic that I’ve discussed lightly over the course of my journey with epilepsy. Is it a mere coincidence or has my…

    By Tiffany Kairos
  • Summertime

    How to Beat the Heat Living with Epilepsy

    August 6, 2019 / No Comments

    “‘Cause a little bit of summer is what the whole year is all about.” – John Mayer What do you think of when you hear the word “summer”? Vacation, flip-flops,…

    By Tiffany Kairos
  • Woman thinking

    What NOT To Do When Living With Epilepsy

    May 28, 2019 / 4 Comments

    Living with epilepsy, I often reflect on new and different ways to embrace the reality of my condition. Over the course of a decade, I’ve pursued and pocketed different suggestions…

    By Tiffany Kairos
  • Group of people walking

    Life With Epilepsy In Public

    April 7, 2019 / 3 Comments

    “Do you know where you are?” “Can you tell me who the President is?”   These are examples of questions I have been asked when I find myself uncomfortably lying…

    By Tiffany Kairos
  • Woman hugging herself

    How To Love Yourself Despite Epilepsy

    March 1, 2019 / 2 Comments

    When epilepsy enters into your life, it can take a massive shot at your self-esteem. You’re not able to do certain things you once could do, you’ve got to rely…

    By Tiffany Kairos
  • Woman holding coffee mug

    5 Things That Help Me During A Seizure Setback

    January 30, 2019 / 2 Comments

    In the over ten years that I have lived with epilepsy and experienced seizures, I can’t tell you just how many seizures have pained me, drained me, and unplugged me…

    By Tiffany Kairos
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About Me

Tiffany Kairos

Hi there! I'm an epilepsy patient advocate, blogger, content creator and the founder of The Epilepsy Network (TEN). Within this blog I talk about my experience with epilepsy, also providing tips, encouragement and motivation to live your best life while navigating epilepsy.

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Because epilepsy is my life 🤌🏼 . . #epilepsy Because epilepsy is my life 🤌🏼
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#epilepsy #epilepsyawareness #chronicillnessadvocate #chronicillnessawarenes #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport  #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel
✔️ “You’re handling this like a boss.”
✔️ “Your strength is seriously inspiring.”
✔️ “I’m here to back you up anytime.”
✔️ “You’re not alone in this—you’ve got me.”
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#epilepsy #epilepsyawareness #chronicillnessadvocate #chronicillnessawarenes #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport  #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel
I feel like a human Tic Tac Box 🫢😂 . . #epil I feel like a human Tic Tac Box 🫢😂
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#epilepsy #epilepsyawareness #chronicillnessadvocate #chronicillnessawarenes #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport  #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel
Epilepsy can throw some curveballs, but with the r Epilepsy can throw some curveballs, but with the right mindset and support, you can handle it like a pro. 😉

These tips have helped me find balance and take control of my journey. Swipe for tips on navigating life and making it work for you! 🙌🏼
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#epilepsy #epilepsyawareness #fearlesslyfightingepilepsy #chronicillness #epilepsycommunity #invisibleillness #spooniesupport #raiseawarenessofepilepsy#tiffanytalksepilepsy
Cozy just got an upgrade! As a proud hoodie girl, Cozy just got an upgrade! As a proud hoodie girl, I thought I’d seen it all—until @gianthoodies sent me their oversized hoodie made of the softest, plush fabric imaginable. Let me tell you, this isn’t just a hoodie—it’s a wearable hug that beats out every hoodie in my collection! 😻

I get cold easily, so this will be my go-to for surviving winter. Whether I’m enjoying a rest day, recovering after a seizure, or simply embracing my homebody vibes, this hoodie wraps me in ultimate comfort. It’s like lounging in a cloud!

Plus, Giant Hoodies offers a variety of colors, styles, and even customizable options, so there’s something for everyone. Seriously, click their name and check them out—I highly recommend snagging one for yourself (or a gift for a fellow hoodie lover)! Thank you, @GiantHoodies, for sending me my new winter essential. ❄️🖤
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#reels #newreels #newreel #advocatealways #epilepsyawarenessmonth #epilepsy #epilepsyawareness #GiantHoodies #catmom #comfyhoodie #musthave #highlyrecommended
Cheers to another amazing month of epilepsy awaren Cheers to another amazing month of epilepsy awareness, warriors! 🙌🏼

Let’s keep going and going and going! ✊🏼💜

Thank you to everyone who showed up in support! 👏🏼
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#epilepsy #epilepsyawareness #chronicillnessadvocate #chronicillnessawarenes #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport  #spooniesisterhood #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel #advocatealways #epilepsyawarenessmonth
Ativan knocks me out 😴😴😴 . . #epilepsy #e Ativan knocks me out 😴😴😴
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#epilepsy #epilepsyawareness #chronicillnessadvocate #chronicillnessawarenes #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport  #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel #epilepsyawarenessmonth #ativan #rescuemedication
This little girl had no idea what life had in stor This little girl had no idea what life had in store for her. She couldn’t have imagined that in 20 years, she’d be diagnosed with epilepsy—a condition that would bring its share of challenges, battles, and lessons.

But what she also couldn’t foresee is how those challenges would shape her into the person she is today: an advocate raising awareness, supporting others around the world, and proving that life’s toughest moments can lead to incredible purpose. ❤️
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#epilepsy #epilepsyawareness #fearlesslyfightingepilepsy #chronicillness #epilepsycommunity #invisibleillness #spooniesupport #raiseawarenessofepilepsy #tiffanytalksepilepsy #epilepsyawarenessmonth
🍁 Support system 🍁 Advocacy 🍁 Medication 🍁 Support system
🍁 Advocacy
🍁 Medication options
🍁 Attentive and supportive doctors
🍁 Access to resources
🍁 Small victories 
🍁 The Epilepsy Community

Happy Thanksgiving everyone! 🍽️🦃
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#epilepsy #epilepsyawareness #chronicillnessadvocate #chronicillnessawarenes #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport  #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel #epilepsyawarenessmonth #thanksgiving #happythanksgiving
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Disclaimer

This blog is not here to replace medical advice from trained professionals.

Please seek medical advice.

This blog serves to offer my personal experience with epilepsy, what has worked for me, encouragement and support.

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