10 Things I Don’t Do While Living With Epilepsy

Out of the corner of my eye, I see the minutes pass by, I flip the calendar to a brand new month, watching the seasons change. Leaves fall and dance in the wind, followed by snowflakes slowly floating to the ground. Smiling with ambition, dreams and hopes as the gigantic ball slides down in Times Square to welcome in a brand new year at the stroke of midnight. Throughout all of this, 24 hours a day, 7 days a week, combating seizures big and small.

Living with a chronic illness is a full-time job, while maintaining your other role(s) as well. Maybe your a spouse, a student, an employee, a parent or a combination of any of these. We’re sometimes given a mighty mountain of responsibility, having to navigate the understandable feelings of frustration, anger, sadness or even depression. What we do physically and emotionally helps our journey to be a little less rocky and a lot more easy.

Also, what we DON’T do physically and emotionally helps us along our journey tremendously.

Below, I’ve listed 10 things that I no longer do while living with epilepsy:

  1. I don’t blame myself for my epilepsy diagnosis
  2. I don’t hide away from the outside world because of my epilepsy diagnosis
  3. I don’t look at those without epilepsy with a heavy heart
  4. I don’t stop living life to the fullest because of my epilepsy diagnosis
  5. I don’t keep my epilepsy diagnosis a secret
  6. I don’t allow negative self-talk to join me on my journey
  7. I don’t neglect my physical and emotional health because of my epilepsy diagnosis
  8. I don’t prevent myself from crying when in need of emotional release
  9. I don’t neglect my responsibilities because of my epilepsy diagnosis
  10. I don’t give up because I have been diagnosed with epilepsy

Epilepsy is a condition that we didn’t ask for or were prepared for. As we live it, let us make the journey less burdensome with the will to cast aside anything that does not positively guide us forward.

Would you add to this list?
I’d love to hear from you! Share your thoughts and takeaways in the comments!

Tiffany Kairos

I am a happily-ever-after wife, an epilepsy diagnosee, advocate for epilepsy awareness (The Epilepsy Network), life lover & Christ inspired! Life is a journey and I'm loving every moment of it. Even the bumps in the road!


  • Avatar
    Hailey Miller

    Hi Mom here, I have a son who’s been diagnosed with childhood epilepsy syndrome, this means their epilepsy has specific characteristics. These can include the type of seizure or seizures they have, the age when the seizures started and the specific results of an electroencephalogram (EEG). An EEG test is painless, and it records the electrical activity of the brain. In my son’s case, he has “benign” which means they usually have a good outcome and usually go away once the child reaches a certain age. And as a mom, I don’t want my son to suffer this kind of illness for a very long time. He’s 5 yrs old now and he is doing great in school. That’s why I am searching for the best solution for my son and as along the way, I read this https://www.worldwide-marijuana-seeds.com/products/dna-genetics-sour-kosher that cannabis can be the solution to my problem. But I did not try it yet. So am just asking if it safe for my son? Any reply will highly appreciate. Thanks in advance.

  • Avatar
    Mandy Krzywonski

    Beautiful and empowering post! A post that everyone should take into consideration as they work on their perspective of having Epilepsy.

  • Avatar
    Liz Welker

    I don’t fear living with epilepsy. I don’t get careless with my eating so I can maintain control. I don’t feel shame for something that’s not my fault. I don’t allow epilepsy–or any of my other health conditions–to define me or dictate my life.

  • Avatar
    Rose Savage

    I don’t allow epilepsy to define me. I am not “An Epileptic”, I am a Person With Epilepsy because it’s not who I am, it’s the neurological disorder that I have.

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