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  • How To Keep Your Relationship Rock Solid Despite Living With Epilepsy

    October 19, 2021 / No Comments

    How To Keep Your Relationship Rock Solid Despite Living With Epilepsy Having a medical condition such as epilepsy, can have an effect on even the greatest of relationships. The one…

    By Tiffany Kairos
  • Husband and wife

    5 Things to Remember When Being a Spouse with Epilepsy

    February 5, 2021 / 4 Comments

    I’m nowhere near the perfect wife, but I do know that marriage with a chronic illness is challenging, and takes intentional effort. The Epilepsy Condition Living with epilepsy and learning…

    By Tiffany Kairos
  • Intimacy

    Breaking the Ice on Intimacy and Epilepsy

    September 25, 2019 / 2 Comments

    Yep, I’m going there. That awkward, not-often talked about subject coupled with epilepsy. When epilepsy and seizures decide to kill the mood for intimacy in a relationship. Sometimes we might…

    By Tiffany Kairos

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About Me

Tiffany Kairos

Hi there! I'm an epilepsy patient advocate, blogger, content creator and the founder of The Epilepsy Network (TEN). Within this blog I talk about my experience with epilepsy, also providing tips, encouragement and motivation to live your best life while navigating epilepsy.

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Epilepsy advocacy isn’t a hobby or a way to pass Epilepsy advocacy isn’t a hobby or a way to pass the time. 

Epilepsy is a way of life! My mission and my passion! ❤️‍🔥

Raising awareness, helping others, and sharing my story is what gets me up in the morning. 👏🏼

I am an epilepsy advocate that has faced many challenges but refuses to back down. 

Epilepsy may be in my life, but it doesn’t own my life. ✊🏼
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#epilepsy #epilepsyawareness #fearlesslyfightingepilepsy #chronicillness #chronicillnessadvocate #epilepsycommunity #invisibleillness #spooniesupport #spooniecommunity #spooniesisterhood #raiseawarenessofepilepsy#tiffanytalksepilepsy #spooniestrong #epilepsyawarenessmonth #wontbackdown #refusetobackdown #epilepsyadvocate #epilepsyadvocacy #photoshoot
BUSTED! 🫣 We’ve all forgotten to take our me BUSTED! 🫣

We’ve all forgotten to take our meds at some time in the past! It’s human to forget a dose or take it late. 

Sometimes we get caught up with work, a fun activity, a task,  etc. 

What helps me is to have reminders ready to go on the phone. 📱

Also apps such as @epsyhealth. Free to download on both iOS and Android. 👍🏼

Missed medication is the leading cause for breakthrough seizures. 

Others are the ones I included in the video:

😥 Stress
😴 Lack of sleep
☕️ Excessive amounts of caffeine 

What are other seizure triggers? What are some seizure triggers for you? Drop below! ⬇️
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#epilepsy #epilepsyawareness #fearlesslyfightingepilepsy #chronicillness #chronicillnessadvocate #epilepsycommunity #invisibleillness #spooniesupport #spooniecommunity #spooniesisterhood #raiseawarenessofepilepsy#tiffanytalksepilepsy #spooniestrong #epilepsyawarenessmonth
Would 15 years worth of my epilepsy medical record Would 15 years worth of my epilepsy medical records help? 🤔😂
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#chronicillnessadvocate #chronicillnessawareness #epilepsyawareness #endepilepsy #epilepsyawarenessmonth  #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport #epilepsyawarenessmonth #spooniesisterhood #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel #brucealmighty #epilepsymedicalrecords
Sometimes I can be a little dazed and confused aft Sometimes I can be a little dazed and confused after a seizure 😵‍💫

The Postictal phase (when you’re recovering from a seizure) can oftentimes make a person feel confused and it can be tough to recall names, dates, and where they are. 

There’ve been occasions where I’ve had seizures in public and upon recovery, am asked questions to check my cognition to which I was unable to respond because my brain was completely scrambled. 

I couldn’t even remember my own name! Was I Captain Jack Sparrow? 😵😅

Each person is different, and it takes time to bounce back. To have the ability to respond to questions clearly. 

Sometimes, it’s a matter of minutes, other times hours. 

When you experience a seizure, does your memory get a bit shaken up? About how long does it last? ⏰

Ever think you were Captain Jack Sparrow? 🏴‍☠️🤣

Let’s talk in the comments! ⬇️
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#chronicillnessadvocate #chronicillnessawareness #epilepsyawareness #endepilepsy #epilepsyawarenessmonth  #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport #epilepsyawarenessmonth #spooniesisterhood #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel #jacksparrow #johnnydepp
No doubt my seizures act just like this! Such a br No doubt my seizures act just like this! Such a brat! 😒😹

How about yours? Seem familiar? 😅

Tell me a bit about symptoms you experience in the comments. ⬇️
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#epilepsy #epilepsyawareness #chronicillnessadvocate #chronicillnessawarenes #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport  #spooniesisterhood #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel
What is epilepsy? 🤓 . . #epilepsy #epilepsyawar What is epilepsy? 🤓
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#epilepsy #epilepsyawareness #fearlesslyfightingepilepsy #chronicillness #chronicillnessadvocate #epilepsycommunity #invisibleillness #spooniesupport #spooniecommunity #spooniesisterhood #raiseawarenessofepilepsy#tiffanytalksepilepsy #spooniestrong #epilepsyawarenessmonth
@d.o.s.e.y new Pill Compact and Pill Compact Purse @d.o.s.e.y new Pill Compact and Pill Compact Purse are THEE perfect on-the-go set!

Isn’t this set gorgeous?! 😻

Check out @d.o.s.e.y page for these and even more stylish pill organizers! 
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#epilepsy #epilepsyawareness #Dosey #pillorganizer #epilepsyawarenessmonth #gorgeouspillorganizers #chronicillness #tiffanytalksepilepsy #FearlesslyFightingEpilepsy
One common misconception about a person with epile One common misconception about a person with epilepsy is that they can’t live full, normal lives. 

This is totally false. 🙅🏻‍♀️

As a matter of fact, I experienced this misconception first-hand. Someone that I know discovered photographs of me having a fun time on vacation which in turn caused them to question the severity of my epilepsy.

“If she’s so sick, shouldn’t she be in bed or something?” 

At first I was hurt by this comment but soon after I realized that they lacked understanding and they needed education. 🩵

We do have good days and can take part in certain things that a healthy person can do. We may have to make some adjustments, but that doesn’t mean that we are totally exempt from enjoying certain activities. 🩷

So don’t let epilepsy stop you from reaching for your dreams! 🌟

What’s something you’ve accomplished or plan to accomplish? 

Let’s talk in the comments! ⬇️
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#chronicillnessadvocate #chronicillnessawareness #epilepsyawareness #endepilepsy #epilepsyawarenessmonth  #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport #epilepsyawarenessmonth #spooniesisterhood #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel
I couldn’t be happier to collaborate with @relea I couldn’t be happier to collaborate with @releafpack and debut my very own pattern! 🥹

“Moonlit Melodies” is out now! 🌙🎶

Find it on ReLeafpack.com or click the link in my story!☝🏼
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#epilepsy #epilepsyawareness #fearlesslyfightingepilepsy #chronicillness #chronicillnessadvocate #epilepsycommunity #invisibleillness #spooniesupport #spooniecommunity #tiffanytalksepilepsy #epilepsyawarenessmonth #moonlitmelodies #ReLeafPack #moonlitmelodiesoutnow #releafpackdebut
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Disclaimer

This blog is not here to replace medical advice from trained professionals.

Please seek medical advice.

This blog serves to offer my personal experience with epilepsy, what has worked for me, encouragement and support.

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