How To Care For An Epilepsy Caregiver

Caregivers devote time and energy — assisting with daily activities and chores, providing transportation, managing household expenses, or helping to cope with chronic illness and medication management.

Watching loved ones suffer seizures is also a difficult experience for caregivers. In some cases, caregivers may feel overwhelmed by the feeling of helplessness.

As much as we need them, they need us too.

My husband is my caregiver and he goes well above and beyond taking care of me, while working full time! Taking care of someone with an unpredictable illness is a challenge but it doesn’t stop him from ensuring that I’m safe, secure and happy. I am forever grateful for his love and care.

Also, his health is important to me. So reciprocating is key.

Here are some helpful tips:

Be Responsible –
  • Take your medicine on time every time so they don’t have to remind you
  • Keep track of your seizure activity
  • Avoid situations and circumstances that might trigger a seizure
  • Be open and honest about symptoms
Be a Good Listener and a Good Communicator –
  • Exhibit patience
  • Give your undivided attention
  • Ask meaningful questions
  • Circle back to points made earlier in the conversation
  • Provide your input
Encourage Self-Care –
  • Ask for and accept help
  • Set realistic goals
  • Research local caregiving resources
  • Join a support group (locally and online)
  • Stay healthy and active (diet and exercise)
Give Tokens of Appreciation –
  • Write an encouraging note
  • Share a word of gratitude
  • Send a bouquet of flowers

Caregivers need support and encouragement. So take time to make sure the caregivers you know are reminded that they are appreciated and are also getting the care they need.

Tiffany Kairos

I am a happily-ever-after wife, an epilepsy diagnosee, advocate for epilepsy awareness (The Epilepsy Network), life lover & Christ inspired! Life is a journey and I'm loving every moment of it. Even the bumps in the road!

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