10 Things To Know About My Life With Epilepsy
Living with epilepsy for over 15 years has shaped my journey in ways I could have never imagined. Itβs easy for people to see the outward effects of seizures, but thereβs so much more beneath the surface that often goes unnoticed. Epilepsy impacts my daily life in unique ways.
Below are a few key things to help others understand what itβs like to live with this condition:
Epilepsy is different for everyone β
Not all seizures look the same, and epilepsy affects people in unique ways. My experience may differ from what others imagine or have seen.
Seizures arenβt always dramatic β
Some of my seizures may not involve convulsions; they can be subtle, like staring spells or brief moments of confusion.
I may need extra time β
After a seizure, I can feel disoriented or tired and may need time to recover. Please be patient if I need a moment to rest or collect myself.
Itβs more than just a condition β
Epilepsy affects not only my brain but my emotions, and daily routines. Itβs a part of my life that requires constant management.
I have good days and bad days β
There are times when I feel perfectly fine and others when Iβm dealing with fatigue, anxiety, or the aftermath of a seizure.
I canβt always predict my seizures β
Even though I try to avoid triggers, thereβs no guarantee I wonβt have a seizure. This uncertainty can be stressful.
Iβm not fragile, but I need understanding β
I live my life fully, but certain activities or environments may be risky for me, so I sometimes have to adjust how I do things.
Epilepsy can affect my memory β
I might forget things, even simple or recent details, because brain fog is common for people with epilepsy.
Itβs okay to ask questions β
Iβd rather people ask me questions about epilepsy than make assumptions. Awareness and understanding can help reduce the stigma.
Iβm strong, but I appreciate support β
Living with epilepsy has made me strong, but having the support and kindness of those around me means the world to me.
At the end of the day, I want people to understand that epilepsy is more than just the seizures you might see. Thereβs a lot that goes on behind the scenes that isnβt always obvious.
Now, it’s your turn! What’s one thing to know about your life with epilepsy?
One Comment
Sumari
I have been experiencing short term memmory loss for quite a while and that is really a challenge.I sometimes feel.Is it really worth reading something.For how long will I remember it.
I get very sad and emotional after a seizure and need time to get over the fact that it happend again,but I am getting better at that.
Heat really effects my brain.I can’t think proper then.
I need to take a nap every afternoon for an hour.
I need to plan my days very tharough as I needing to walk and use the bus takes allot longer.It can sometimes get me down and then I coun’t my blessings.
I can’t do as much in a day as I would like,therefore I alsi plan my weeks.