7 Code Words Those With Epilepsy Understand
Epilepsy is its own challenge and also has its own language that only those with the condition can fully understand. And when youโre in the midst of symptoms like brain fog or fatigue, sometimes being able to communicate in fewer words with those who โget itโ can be extremely helpful. Of course, who can understand and empathize better than those who may sometimes feel so foggy the word itself is lost in the fog?
Many of those with epilepsy may use certain โcode wordsโ or even hand gestures โ part of a special โlanguageโ โ that helps communicate what is being experienced and better understand one another in the process.
Below are โcode wordsโ that I say to help communicate what Iโm feeling and need:
1. โHowโs the weather looking?โ
This means if the weather is bad, it is likely the culprit of my increase in seizure activity.
2. โIโm fine.โ
Sometimes, this means that โI’m not fine, but I’m not ready to talk about it.โ
3. โIโm all out of spoons.โ
This means Iโm lacking energy and need to rest.
4. โMy battery is dead.โ
This mean that Iโm feeling very fatigued
5. โLeave a message.โ
This means that I donโt really feel like talking and want time alone.
6. โThe fog has rolled in.โ
This means that brain fog has set in and I canโt think of the word(s) I want to say.
7. โMy brain is in mid-stormโ
This means that I am experiencing a seizure or cluster of seizures.
Are there any โcode wordsโ you and your friends with epilepsy use that you think should be added to the list? Post below!
One Comment
Cindy Horsley
I have petit mal seizures and they happen quite regularly and often I will stop mid sentence and wait until the seisure is over before I carry on with what I was saying or after someone has said something to me it takes me a while to comprehend what was said… my fiance and I have now nicknamed this “page re-loading”.