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  • Why I Post On Social Media About Epilepsy

    June 27, 2023 / 1 Comment

    Social media is a way to connect with people all around the world. A grand stage to stand on and educate, inspire, encourage, even network from the comfort of your…

    By Tiffany Kairos
  • 7 Things It’s Okay To Do Living With Epilepsy

    March 22, 2023 / 1 Comment

    Being diagnosed with a chronic illness is a life changing experience. It becomes a matter of adjustment and adaptation. It becomes a matter of limitation and certain sacrifices. Undertakings to…

    By Tiffany Kairos
  • 10 Things People Don’t Realize I’m Doing Because I Have Epilepsy

    February 21, 2023 / 3 Comments

    To an outsider, things like choosing water over coffee or leaving a social event early might look like a reflection of your personality. But to a person with epilepsy, these…

    By Tiffany Kairos
  • 5 Pros Of Talking About Epilepsy

    January 23, 2023 / No Comments

    Epilepsy is a common neurological disorder that causes recurrent unprovoked seizures. It is stigmatized, misunderstood, feared, overlooked and therefore grossly under-funded. I’ve lived with epilepsy for almost fifteen years. Talking…

    By Tiffany Kairos
  • Catamenial Epilepsy And Me

    November 29, 2022 / 2 Comments

    Yep. I’m going there. That awkward, not-often talked about subject coupled with epilepsy. First thing’s first. That time of the month sucks. An unwelcome guest that barges in and makes…

    By Tiffany Kairos
  • 7 Things I Do That Strengthen My Mental Health While Living With Epilepsy

    October 10, 2022 / No Comments

    Living with epilepsy is layers deep. It’s not solely experiencing seizures. Not only are those of us impacted physically but mentally too. The CDC reports that as many as 30%…

    By Tiffany Kairos
  • 7 Ways My Epilepsy Reshaped Me

    September 9, 2022 / No Comments

    Before my epilepsy diagnosis, I never owned my health and well-being. Now it’s one of the main focuses of my daily life. My head used to be “buried in the…

    By Tiffany Kairos
  • 5 Lessons I Have Learned Living With Epilepsy

    May 20, 2022 / No Comments

    I wasn’t given a choice in having epilepsy but I did have a choice in how I dealt with it. I didn’t anticipate becoming chronically ill. I wasn’t prepared for…

    By Tiffany Kairos
  • 7 Code Words Those With Epilepsy Understand

    April 5, 2022 / 1 Comment

    Epilepsy is its own challenge and also has its own language that only those with the condition can fully understand. And when you’re in the midst of symptoms like brain…

    By Tiffany Kairos
  • 5 Mistakes I’ve Made With Epilepsy

    March 15, 2022 / 2 Comments

    Learning to live with a chronic illness can be challenging. There is no shortage of new things to learn and juggle. Mistakes are bound to happen and I’ve made plenty…

    By Tiffany Kairos
  • Getting Out Of My Chronic Illness Comfort Zone

    February 1, 2022 / No Comments

    Have you ever heard the quote “Get comfortable being uncomfortable”….? That’s a clear statement for those of us living with a chronic illness. Being diagnosed with a chronic illness can…

    By Tiffany Kairos
  • 5 Things Everyone Should Understand About Epilepsy

    November 10, 2021 / 2 Comments

    Epilepsy is widely misunderstood due to lack of awareness. There are so many aspects to the condition that most are unaware of. Have a look at 5 things everyone should…

    By Tiffany Kairos
  • Writing a letter

    A Letter to Myself the Day After My Epilepsy Diagnosis

    May 26, 2021 / 4 Comments

    “Life with epilepsy doesn’t come with a handbook. We write it as we go along.” You’ve been diagnosed with epilepsy. Where do you go from here? I know you’ve felt…

    By Tiffany Kairos
  • Shoes on the road

    Setting Boundaries with Epilepsy – What You Need to Know

    March 5, 2021 / No Comments

    Living with a chronic illness means learning to get comfortable setting boundaries and saying “no”. My epilepsy diagnosis required placing certain actions and activities on the back burner to avoid…

    By Tiffany Kairos
  • How I Exercise While Living with Epilepsy | Plus What You Need to Know Before Hitting the Gym

    September 30, 2020 / 1 Comment

    This is a topic that many people have reached out to me in regards to and as someone who avidly takes part in exercise, I find it beneficial and very…

    By Tiffany Kairos
  • brain fog

    Understanding Brain Fog And Epilepsy

    August 31, 2020 / 3 Comments

    Speaking candidly, alongside seizures, brain fog is one of the most difficult – and sometimes exhausting – parts of living with epilepsy. What does brain fog feel like? Brain fog…

    By Tiffany Kairos
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About Me

Tiffany Kairos

Hi there! I'm an epilepsy patient advocate, blogger, content creator and the founder of The Epilepsy Network (TEN). Within this blog I talk about my experience with epilepsy, also providing tips, encouragement and motivation to live your best life while navigating epilepsy.

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Because epilepsy is my life 🤌🏼 . . #epilepsy Because epilepsy is my life 🤌🏼
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#epilepsy #epilepsyawareness #chronicillnessadvocate #chronicillnessawarenes #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport  #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel
✔️ “You’re handling this like a boss.”
✔️ “Your strength is seriously inspiring.”
✔️ “I’m here to back you up anytime.”
✔️ “You’re not alone in this—you’ve got me.”
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#epilepsy #epilepsyawareness #chronicillnessadvocate #chronicillnessawarenes #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport  #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel
I feel like a human Tic Tac Box 🫢😂 . . #epil I feel like a human Tic Tac Box 🫢😂
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#epilepsy #epilepsyawareness #chronicillnessadvocate #chronicillnessawarenes #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport  #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel
Epilepsy can throw some curveballs, but with the r Epilepsy can throw some curveballs, but with the right mindset and support, you can handle it like a pro. 😉

These tips have helped me find balance and take control of my journey. Swipe for tips on navigating life and making it work for you! 🙌🏼
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#epilepsy #epilepsyawareness #fearlesslyfightingepilepsy #chronicillness #epilepsycommunity #invisibleillness #spooniesupport #raiseawarenessofepilepsy#tiffanytalksepilepsy
Cozy just got an upgrade! As a proud hoodie girl, Cozy just got an upgrade! As a proud hoodie girl, I thought I’d seen it all—until @gianthoodies sent me their oversized hoodie made of the softest, plush fabric imaginable. Let me tell you, this isn’t just a hoodie—it’s a wearable hug that beats out every hoodie in my collection! 😻

I get cold easily, so this will be my go-to for surviving winter. Whether I’m enjoying a rest day, recovering after a seizure, or simply embracing my homebody vibes, this hoodie wraps me in ultimate comfort. It’s like lounging in a cloud!

Plus, Giant Hoodies offers a variety of colors, styles, and even customizable options, so there’s something for everyone. Seriously, click their name and check them out—I highly recommend snagging one for yourself (or a gift for a fellow hoodie lover)! Thank you, @GiantHoodies, for sending me my new winter essential. ❄️🖤
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#reels #newreels #newreel #advocatealways #epilepsyawarenessmonth #epilepsy #epilepsyawareness #GiantHoodies #catmom #comfyhoodie #musthave #highlyrecommended
Cheers to another amazing month of epilepsy awaren Cheers to another amazing month of epilepsy awareness, warriors! 🙌🏼

Let’s keep going and going and going! ✊🏼💜

Thank you to everyone who showed up in support! 👏🏼
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#epilepsy #epilepsyawareness #chronicillnessadvocate #chronicillnessawarenes #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport  #spooniesisterhood #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel #advocatealways #epilepsyawarenessmonth
Ativan knocks me out 😴😴😴 . . #epilepsy #e Ativan knocks me out 😴😴😴
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#epilepsy #epilepsyawareness #chronicillnessadvocate #chronicillnessawarenes #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport  #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel #epilepsyawarenessmonth #ativan #rescuemedication
This little girl had no idea what life had in stor This little girl had no idea what life had in store for her. She couldn’t have imagined that in 20 years, she’d be diagnosed with epilepsy—a condition that would bring its share of challenges, battles, and lessons.

But what she also couldn’t foresee is how those challenges would shape her into the person she is today: an advocate raising awareness, supporting others around the world, and proving that life’s toughest moments can lead to incredible purpose. ❤️
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#epilepsy #epilepsyawareness #fearlesslyfightingepilepsy #chronicillness #epilepsycommunity #invisibleillness #spooniesupport #raiseawarenessofepilepsy #tiffanytalksepilepsy #epilepsyawarenessmonth
🍁 Support system 🍁 Advocacy 🍁 Medication 🍁 Support system
🍁 Advocacy
🍁 Medication options
🍁 Attentive and supportive doctors
🍁 Access to resources
🍁 Small victories 
🍁 The Epilepsy Community

Happy Thanksgiving everyone! 🍽️🦃
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#epilepsy #epilepsyawareness #chronicillnessadvocate #chronicillnessawarenes #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport  #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel #epilepsyawarenessmonth #thanksgiving #happythanksgiving
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Disclaimer

This blog is not here to replace medical advice from trained professionals.

Please seek medical advice.

This blog serves to offer my personal experience with epilepsy, what has worked for me, encouragement and support.

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