Awareness,  Epilepsy

8 Things To Keep Track Of In Your Epilepsy Diary

Epilepsy diaries serve as a good tool to help you. In teamwork with your doctor, find the best treatment options for managing your seizures and epilepsy.

Following my epilepsy diagnosis, I was encouraged to document my seizure activity. What to jot down was not explained which discouraged me from pursuing this plan.

When I connected with other epilepsy patients through social media and later became an epilepsy advocate, I learned so much of what was necessary to keep track of.

Whether a physical notebook or a phone app, it’s important to document specific details of everything that occurs before, during and after a seizure as well as the actions you take to manage them.

Award Winning Epilepsy App For iOS & Android:


Below are things to keep track of in your epilepsy diary:
  • How often you have a seizure
  • How other people describe your seizure
  • The name, dosage and how often you take your medication
  • Your seizure triggers
  • Any and all side effects caused by your medication
  • Any and all side effects alone
  • How you feel after a seizure
  • Any changes in seizure activity

What other details would you add to this list? Post in the comments!

Tiffany Kairos

I am a happily-ever-after wife, an epilepsy diagnosee, advocate for epilepsy awareness (The Epilepsy Network), life lover & Christ inspired! Life is a journey and I'm loving every moment of it. Even the bumps in the road!

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