Epilepsy diaries serve as a good tool to help you. In teamwork with your doctor, find the best treatment options for managing your seizures and epilepsy.
Following my epilepsy diagnosis, I was encouraged to document my seizure activity. What to jot down was not explained which discouraged me from pursuing this plan.
When I connected with other epilepsy patients through social media and later became an epilepsy advocate, I learned so much of what was necessary to keep track of.
Whether a physical notebook or a phone app, it’s important to document specific details of everything that occurs before, during and after a seizure as well as the actions you take to manage them.
Award Winning Epilepsy App For iOS & Android:
Below are things to keep track of in your epilepsy diary:
- How often you have a seizure
- How other people describe your seizure
- The name, dosage and how often you take your medication
- Your seizure triggers
- Any and all side effects caused by your medication
- Any and all side effects alone
- How you feel after a seizure
- Any changes in seizure activity
What other details would you add to this list? Post in the comments!