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  • Memory

    5 Ways I Improve My Memory While Living With Epilepsy

    October 8, 2019 / 2 Comments

    “Memory loss is like system reboot.” Memory hindrances. A topic that I’ve discussed lightly over the course of my journey with epilepsy. Is it a mere coincidence or has my…

    By Tiffany Kairos
  • Intimacy

    Breaking the Ice on Intimacy and Epilepsy

    September 25, 2019 / 2 Comments

    Yep, I’m going there. That awkward, not-often talked about subject coupled with epilepsy. When epilepsy and seizures decide to kill the mood for intimacy in a relationship. Sometimes we might…

    By Tiffany Kairos
  • Road

    The Road Doesn’t End Here

    September 18, 2019 / 1 Comment

    One of the most difficult challenges since my diagnosis with epilepsy is finding reliable means of transportation. Sure. I have my husband and members of family who extend their willingness…

    By Tiffany Kairos
  • Caregiver and spouse

    Secondary Epilepsy

    August 31, 2019 / 5 Comments

    “Because I love you, because I care for you, because I know what you endure… you will never endure alone.” – Chris Kairos December 11, 2008, what seemed like a…

    By Tiffany Kairos
  • Summertime

    How to Beat the Heat Living with Epilepsy

    August 6, 2019 / No Comments

    “‘Cause a little bit of summer is what the whole year is all about.” – John Mayer What do you think of when you hear the word “summer”? Vacation, flip-flops,…

    By Tiffany Kairos
  • Woman thinking

    What NOT To Do When Living With Epilepsy

    May 28, 2019 / 4 Comments

    Living with epilepsy, I often reflect on new and different ways to embrace the reality of my condition. Over the course of a decade, I’ve pursued and pocketed different suggestions…

    By Tiffany Kairos
  • Group of people walking

    Life With Epilepsy In Public

    April 7, 2019 / 3 Comments

    “Do you know where you are?” “Can you tell me who the President is?”   These are examples of questions I have been asked when I find myself uncomfortably lying…

    By Tiffany Kairos
  • Woman hugging herself

    How To Love Yourself Despite Epilepsy

    March 1, 2019 / 2 Comments

    When epilepsy enters into your life, it can take a massive shot at your self-esteem. You’re not able to do certain things you once could do, you’ve got to rely…

    By Tiffany Kairos
  • Woman holding coffee mug

    5 Things That Help Me During A Seizure Setback

    January 30, 2019 / 2 Comments

    In the over ten years that I have lived with epilepsy and experienced seizures, I can’t tell you just how many seizures have pained me, drained me, and unplugged me…

    By Tiffany Kairos
  • Epilepsy Quirks

    October 12, 2017 / 4 Comments

    The journey in living with epilepsy hasn’t always been without its stumbles and trials. Regardless, I’ve learned quite a bit throughout the years. In having developed a tougher skin, absorbing…

    By Tiffany Kairos
  • 5 Things To Remember About Someone With Epilepsy

    May 16, 2017 / 5 Comments

    Epilepsy can be a challenging tribulation, not only for an estimated 3 million Americans such as myself who battle each day, but in addition for all of the people in…

    By Tiffany Kairos
  • What Epilepsy Did

    September 27, 2016 / 4 Comments

    Along my epilepsy journey, I’d come across a profound poem that most know of, titled “What Cancer Cannot Do.” This powerful poem proclaims statements such as, “it cannot silence courage,”…

    By Tiffany Kairos
  • 6 Things About Having Epilepsy That Aren’t Terrible, Horrible, No Good.

    May 11, 2016 / 3 Comments

    There happens to be this common misconception among some of those who battle epilepsy that, the moment the condition has tipped its hat to your brain and your life, that…

    By Tiffany Kairos
  • To Be A Wife With Epilepsy

    January 3, 2016 / 6 Comments

    When we were engaged to be married, we were on cloud nine with love for one another, goals and dreams for our future together as husband and wife coming together…

    By Tiffany Kairos
  • Why I Am Open About My Epilepsy

    November 30, 2015 / 4 Comments

    There is still to this day such a stigma attached to the condition of epilepsy. It is viewed at as a literal disease by some. Something that you can catch…

    By Tiffany Kairos
  • Anxiety and Epilepsy: How To Put A Stop To It Before It Puts A Stop To You

    September 22, 2015 / 1 Comment

    “Anxiety is one little tree in your forest. Step back and look at the whole forest.” Unknown Anxiety. A faceless beast that affects us all at some time or another.…

    By Tiffany Kairos
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About Me

Tiffany Kairos

Hi there! I'm an epilepsy patient advocate, blogger, content creator and the founder of The Epilepsy Network (TEN). Within this blog I talk about my experience with epilepsy, also providing tips, encouragement and motivation to live your best life while navigating epilepsy.

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Because epilepsy is my life 🤌🏼 . . #epilepsy Because epilepsy is my life 🤌🏼
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#epilepsy #epilepsyawareness #chronicillnessadvocate #chronicillnessawarenes #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport  #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel
✔️ “You’re handling this like a boss.”
✔️ “Your strength is seriously inspiring.”
✔️ “I’m here to back you up anytime.”
✔️ “You’re not alone in this—you’ve got me.”
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#epilepsy #epilepsyawareness #chronicillnessadvocate #chronicillnessawarenes #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport  #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel
I feel like a human Tic Tac Box 🫢😂 . . #epil I feel like a human Tic Tac Box 🫢😂
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#epilepsy #epilepsyawareness #chronicillnessadvocate #chronicillnessawarenes #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport  #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel
Epilepsy can throw some curveballs, but with the r Epilepsy can throw some curveballs, but with the right mindset and support, you can handle it like a pro. 😉

These tips have helped me find balance and take control of my journey. Swipe for tips on navigating life and making it work for you! 🙌🏼
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#epilepsy #epilepsyawareness #fearlesslyfightingepilepsy #chronicillness #epilepsycommunity #invisibleillness #spooniesupport #raiseawarenessofepilepsy#tiffanytalksepilepsy
Cozy just got an upgrade! As a proud hoodie girl, Cozy just got an upgrade! As a proud hoodie girl, I thought I’d seen it all—until @gianthoodies sent me their oversized hoodie made of the softest, plush fabric imaginable. Let me tell you, this isn’t just a hoodie—it’s a wearable hug that beats out every hoodie in my collection! 😻

I get cold easily, so this will be my go-to for surviving winter. Whether I’m enjoying a rest day, recovering after a seizure, or simply embracing my homebody vibes, this hoodie wraps me in ultimate comfort. It’s like lounging in a cloud!

Plus, Giant Hoodies offers a variety of colors, styles, and even customizable options, so there’s something for everyone. Seriously, click their name and check them out—I highly recommend snagging one for yourself (or a gift for a fellow hoodie lover)! Thank you, @GiantHoodies, for sending me my new winter essential. ❄️🖤
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#reels #newreels #newreel #advocatealways #epilepsyawarenessmonth #epilepsy #epilepsyawareness #GiantHoodies #catmom #comfyhoodie #musthave #highlyrecommended
Cheers to another amazing month of epilepsy awaren Cheers to another amazing month of epilepsy awareness, warriors! 🙌🏼

Let’s keep going and going and going! ✊🏼💜

Thank you to everyone who showed up in support! 👏🏼
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#epilepsy #epilepsyawareness #chronicillnessadvocate #chronicillnessawarenes #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport  #spooniesisterhood #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel #advocatealways #epilepsyawarenessmonth
Ativan knocks me out 😴😴😴 . . #epilepsy #e Ativan knocks me out 😴😴😴
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#epilepsy #epilepsyawareness #chronicillnessadvocate #chronicillnessawarenes #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport  #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel #epilepsyawarenessmonth #ativan #rescuemedication
This little girl had no idea what life had in stor This little girl had no idea what life had in store for her. She couldn’t have imagined that in 20 years, she’d be diagnosed with epilepsy—a condition that would bring its share of challenges, battles, and lessons.

But what she also couldn’t foresee is how those challenges would shape her into the person she is today: an advocate raising awareness, supporting others around the world, and proving that life’s toughest moments can lead to incredible purpose. ❤️
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#epilepsy #epilepsyawareness #fearlesslyfightingepilepsy #chronicillness #epilepsycommunity #invisibleillness #spooniesupport #raiseawarenessofepilepsy #tiffanytalksepilepsy #epilepsyawarenessmonth
🍁 Support system 🍁 Advocacy 🍁 Medication 🍁 Support system
🍁 Advocacy
🍁 Medication options
🍁 Attentive and supportive doctors
🍁 Access to resources
🍁 Small victories 
🍁 The Epilepsy Community

Happy Thanksgiving everyone! 🍽️🦃
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#epilepsy #epilepsyawareness #chronicillnessadvocate #chronicillnessawarenes #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport  #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel #epilepsyawarenessmonth #thanksgiving #happythanksgiving
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Disclaimer

This blog is not here to replace medical advice from trained professionals.

Please seek medical advice.

This blog serves to offer my personal experience with epilepsy, what has worked for me, encouragement and support.

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