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  • 5 Ways To Get Involved During Epilepsy Awareness Month

    October 31, 2023 / No Comments

    Epilepsy is a neurological condition that affects approximately 3.4 million people nationwide and 65 million people worldwide. Epilepsy is characterized by recurrent seizures that can vary in severity, type and…

    By Tiffany Kairos
  • 5 Ways To Make Friends While Living With Epilepsy

    October 26, 2023 / No Comments

    Making new friends as an adult can sometimes be challenging. Especially when a chronic illness like epilepsy is thrown into the mix. It’s not so easy to make friends or…

    By Tiffany Kairos
  • 6 Sleep Tips For People With Epilepsy

    October 6, 2023 / 3 Comments

    Sleep deprivation is a common seizure trigger for those living with epilepsy. Getting good sleep has the potential to reduce or even prevent seizure activity. According to the National Institute…

    By Tiffany Kairos
  • How To Care For An Epilepsy Caregiver

    September 18, 2023 / 1 Comment

    Caregivers devote time and energy — assisting with daily activities and chores, providing transportation, managing household expenses, or helping to cope with chronic illness and medication management. Watching loved ones…

    By Tiffany Kairos
  • 5 Seizure Triggers and How to Avoid Them

    September 2, 2023 / 1 Comment

    Seizure triggers are events or circumstances that may provoke seizures. Every person with epilepsy is different and so are their triggers. Identifying and avoiding seizure triggers can help prevent seizure…

    By Tiffany Kairos
  • The Power of Epilepsy Support Groups

    August 23, 2023 / 1 Comment

    After being diagnosed with epilepsy, I had no idea who to turn to for help. Navigating life with epilepsy brings its unique set of challenges, but you don’t have to…

    By Tiffany Kairos
  • Top 5 Apps To Relieve Stress For Those Living With Epilepsy

    July 28, 2023 / No Comments

    For many people living with epilepsy, stress can trigger seizures. Living with epilepsy requires stress management. Apps designed to relieve stress, can be instrumental in preventing seizure activity while also…

    By Tiffany Kairos
  • Why I Post On Social Media About Epilepsy

    June 27, 2023 / 1 Comment

    Social media is a way to connect with people all around the world. A grand stage to stand on and educate, inspire, encourage, even network from the comfort of your…

    By Tiffany Kairos
  • 4 Things I Do To Stay Seizure Safe

    June 2, 2023 / No Comments

    Safety is so important. Especially if you’re living with a chronic illness like epilepsy. You should always be prepared. Although my seizures are fairly controlled, I still put safety first.…

    By Tiffany Kairos
  • 9 Ways To Manage Stress While Living With Epilepsy

    May 12, 2023 / No Comments

    Stress is unavoidable—but it is manageable. “Among other factors, stress has been reported as the most frequent trigger for seizures in people with epilepsy.” – National Institutes of Health The…

    By Tiffany Kairos
  • 8 Things To Keep Track Of In Your Epilepsy Diary

    April 3, 2023 / No Comments

    Epilepsy diaries serve as a good tool to help you. In teamwork with your doctor, find the best treatment options for managing your seizures and epilepsy. Following my epilepsy diagnosis,…

    By Tiffany Kairos
  • 7 Things It’s Okay To Do Living With Epilepsy

    March 22, 2023 / 1 Comment

    Being diagnosed with a chronic illness is a life changing experience. It becomes a matter of adjustment and adaptation. It becomes a matter of limitation and certain sacrifices. Undertakings to…

    By Tiffany Kairos
  • 8 Life Hacks To Manage Your Epilepsy

    March 4, 2023 / No Comments

    Living with epilepsy can be tricky but there are some life hacks that can make it a whole lot easier. Such as: Be an expert Researching your condition allows for…

    By Tiffany Kairos
  • 10 Things People Don’t Realize I’m Doing Because I Have Epilepsy

    February 21, 2023 / 3 Comments

    To an outsider, things like choosing water over coffee or leaving a social event early might look like a reflection of your personality. But to a person with epilepsy, these…

    By Tiffany Kairos
  • 15 Uplifting Epilepsy Quotes To Get You Through Tough Days

    February 9, 2023 / 1 Comment

    When I was diagnosed with epilepsy, I was broken and couldn’t utter a word. How could I express my feelings of loneliness and confusion? I felt helpless inside of a…

    By Tiffany Kairos
  • 5 Pros Of Talking About Epilepsy

    January 23, 2023 / No Comments

    Epilepsy is a common neurological disorder that causes recurrent unprovoked seizures. It is stigmatized, misunderstood, feared, overlooked and therefore grossly under-funded. I’ve lived with epilepsy for almost fifteen years. Talking…

    By Tiffany Kairos
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About Me

Tiffany Kairos

Hi there! I'm an epilepsy patient advocate, blogger, content creator and the founder of The Epilepsy Network (TEN). Within this blog I talk about my experience with epilepsy, also providing tips, encouragement and motivation to live your best life while navigating epilepsy.

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Because epilepsy is my life 🤌🏼 . . #epilepsy Because epilepsy is my life 🤌🏼
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#epilepsy #epilepsyawareness #chronicillnessadvocate #chronicillnessawarenes #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport  #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel
✔️ “You’re handling this like a boss.”
✔️ “Your strength is seriously inspiring.”
✔️ “I’m here to back you up anytime.”
✔️ “You’re not alone in this—you’ve got me.”
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#epilepsy #epilepsyawareness #chronicillnessadvocate #chronicillnessawarenes #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport  #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel
I feel like a human Tic Tac Box 🫢😂 . . #epil I feel like a human Tic Tac Box 🫢😂
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#epilepsy #epilepsyawareness #chronicillnessadvocate #chronicillnessawarenes #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport  #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel
Epilepsy can throw some curveballs, but with the r Epilepsy can throw some curveballs, but with the right mindset and support, you can handle it like a pro. 😉

These tips have helped me find balance and take control of my journey. Swipe for tips on navigating life and making it work for you! 🙌🏼
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#epilepsy #epilepsyawareness #fearlesslyfightingepilepsy #chronicillness #epilepsycommunity #invisibleillness #spooniesupport #raiseawarenessofepilepsy#tiffanytalksepilepsy
Cozy just got an upgrade! As a proud hoodie girl, Cozy just got an upgrade! As a proud hoodie girl, I thought I’d seen it all—until @gianthoodies sent me their oversized hoodie made of the softest, plush fabric imaginable. Let me tell you, this isn’t just a hoodie—it’s a wearable hug that beats out every hoodie in my collection! 😻

I get cold easily, so this will be my go-to for surviving winter. Whether I’m enjoying a rest day, recovering after a seizure, or simply embracing my homebody vibes, this hoodie wraps me in ultimate comfort. It’s like lounging in a cloud!

Plus, Giant Hoodies offers a variety of colors, styles, and even customizable options, so there’s something for everyone. Seriously, click their name and check them out—I highly recommend snagging one for yourself (or a gift for a fellow hoodie lover)! Thank you, @GiantHoodies, for sending me my new winter essential. ❄️🖤
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#reels #newreels #newreel #advocatealways #epilepsyawarenessmonth #epilepsy #epilepsyawareness #GiantHoodies #catmom #comfyhoodie #musthave #highlyrecommended
Cheers to another amazing month of epilepsy awaren Cheers to another amazing month of epilepsy awareness, warriors! 🙌🏼

Let’s keep going and going and going! ✊🏼💜

Thank you to everyone who showed up in support! 👏🏼
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#epilepsy #epilepsyawareness #chronicillnessadvocate #chronicillnessawarenes #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport  #spooniesisterhood #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel #advocatealways #epilepsyawarenessmonth
Ativan knocks me out 😴😴😴 . . #epilepsy #e Ativan knocks me out 😴😴😴
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#epilepsy #epilepsyawareness #chronicillnessadvocate #chronicillnessawarenes #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport  #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel #epilepsyawarenessmonth #ativan #rescuemedication
This little girl had no idea what life had in stor This little girl had no idea what life had in store for her. She couldn’t have imagined that in 20 years, she’d be diagnosed with epilepsy—a condition that would bring its share of challenges, battles, and lessons.

But what she also couldn’t foresee is how those challenges would shape her into the person she is today: an advocate raising awareness, supporting others around the world, and proving that life’s toughest moments can lead to incredible purpose. ❤️
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#epilepsy #epilepsyawareness #fearlesslyfightingepilepsy #chronicillness #epilepsycommunity #invisibleillness #spooniesupport #raiseawarenessofepilepsy #tiffanytalksepilepsy #epilepsyawarenessmonth
🍁 Support system 🍁 Advocacy 🍁 Medication 🍁 Support system
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🍁 Attentive and supportive doctors
🍁 Access to resources
🍁 Small victories 
🍁 The Epilepsy Community

Happy Thanksgiving everyone! 🍽️🦃
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#epilepsy #epilepsyawareness #chronicillnessadvocate #chronicillnessawarenes #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport  #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel #epilepsyawarenessmonth #thanksgiving #happythanksgiving
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Disclaimer

This blog is not here to replace medical advice from trained professionals.

Please seek medical advice.

This blog serves to offer my personal experience with epilepsy, what has worked for me, encouragement and support.

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