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  • 8 Best Apps To Help Tackle Epilepsy

    October 31, 2021 / 1 Comment

    Living with epilepsy is more than just knowing your seizure triggers, current medication, and dosage. Apps designed to manage epilepsy can help you to take a practical approach to your…

    By Tiffany Kairos
  • How To Keep Your Relationship Rock Solid Despite Living With Epilepsy

    October 19, 2021 / No Comments

    How To Keep Your Relationship Rock Solid Despite Living With Epilepsy Having a medical condition such as epilepsy, can have an effect on even the greatest of relationships. The one…

    By Tiffany Kairos
  • Doctor and patient

    Things to Consider When Choosing a Doctor

    August 11, 2021 / 1 Comment

    Being diagnosed with a chronic illness is one of the hardest things that can happen to us in our lifetime. I was 22 when epilepsy unexpectedly barged through the doors…

    By Tiffany Kairos
  • Tourist traveling

    5 Helpful Tips for Traveling with Epilepsy

    June 29, 2021 / No Comments

    Ready to hit the open road or hop on the plane to head to that tropical island or that world-renowned national park? Not until you’ve secured everything revolving around your…

    By Tiffany Kairos
  • Writing a letter

    A Letter to Myself the Day After My Epilepsy Diagnosis

    May 26, 2021 / 4 Comments

    “Life with epilepsy doesn’t come with a handbook. We write it as we go along.” You’ve been diagnosed with epilepsy. Where do you go from here? I know you’ve felt…

    By Tiffany Kairos
  • Person feeling guilty

    7 Things Not to Feel Guilty About Living with Epilepsy

    April 14, 2021 / 4 Comments

    Becoming diagnosed with epilepsy is a life-altering event. Epilepsy does not care about your age, or the time within your life. This condition can happen to anyone. Some are introduced…

    By Tiffany Kairos
  • Group of people talking

    5 Things Those Living With Epilepsy Want You to Know

    March 19, 2021 / No Comments

    Epilepsy can intrude into anyone’s life, at any time. Millions of men, women and children battle this selfish and at times difficult condition every single day. All of us diagnosed…

    By Tiffany Kairos
  • Shoes on the road

    Setting Boundaries with Epilepsy – What You Need to Know

    March 5, 2021 / No Comments

    Living with a chronic illness means learning to get comfortable setting boundaries and saying “no”. My epilepsy diagnosis required placing certain actions and activities on the back burner to avoid…

    By Tiffany Kairos
  • Husband and wife

    5 Things to Remember When Being a Spouse with Epilepsy

    February 5, 2021 / 4 Comments

    I’m nowhere near the perfect wife, but I do know that marriage with a chronic illness is challenging, and takes intentional effort. The Epilepsy Condition Living with epilepsy and learning…

    By Tiffany Kairos
  • Open book

    8 Qualities You Can Find in Someone Living with Epilepsy

    December 30, 2020 / 1 Comment

    Often, I reflect back on times that I would tell others that they would never understand what I was going through because they were not living with my epilepsy. Many…

    By Tiffany Kairos
  • Speech bubble

    6 People You Meet Along Your Journey with Epilepsy

    December 8, 2020 / No Comments

    You’ve been diagnosed with epilepsy. A life-changing experience. Epilepsy doesn’t always show its cards and it can go unnoticed by family, friends and the public. With epilepsy being a part…

    By Tiffany Kairos
  • Gifts

    The Ultimate Gift Guide – Gift Ideas for Someone with Epilepsy

    November 20, 2020 / 1 Comment

    Epilepsy is hard to explain, let alone understand. It can be a real head scratcher to come up with an ideal gift for someone living with epilepsy, especially if you…

    By Tiffany Kairos
  • Woman with red hair

    Things to Never Do When Someone Tells You They Have Epilepsy

    November 6, 2020 / 1 Comment

    I remember the very first time that someone spoke the words, “Everything will be okay!” speaking about my epilepsy. Fire engulfed my stomach. When a family member spoke this to…

    By Tiffany Kairos
  • How I Exercise While Living with Epilepsy | Plus What You Need to Know Before Hitting the Gym

    September 30, 2020 / 1 Comment

    This is a topic that many people have reached out to me in regards to and as someone who avidly takes part in exercise, I find it beneficial and very…

    By Tiffany Kairos
  • brain fog

    Understanding Brain Fog And Epilepsy

    August 31, 2020 / 4 Comments

    Speaking candidly, alongside seizures, brain fog is one of the most difficult – and sometimes exhausting – parts of living with epilepsy. What does brain fog feel like? Brain fog…

    By Tiffany Kairos
  • common questions

    10 Most Common Questions People Ask Me About Epilepsy

    July 19, 2020 / 1 Comment

    Over the many years of living with epilepsy, I’ve received a lot of questions about my condition, understandably. Some come up more often than others. Here are 10 of the…

    By Tiffany Kairos
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About Me

Tiffany Kairos

Hi there! I'm an epilepsy patient advocate, blogger, content creator and the founder of The Epilepsy Network (TEN). Within this blog I talk about my experience with epilepsy, also providing tips, encouragement and motivation to live your best life while navigating epilepsy.

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Because epilepsy is my life 🤌🏼 . . #epilepsy Because epilepsy is my life 🤌🏼
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#epilepsy #epilepsyawareness #chronicillnessadvocate #chronicillnessawarenes #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport  #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel
✔️ “You’re handling this like a boss.”
✔️ “Your strength is seriously inspiring.”
✔️ “I’m here to back you up anytime.”
✔️ “You’re not alone in this—you’ve got me.”
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#epilepsy #epilepsyawareness #chronicillnessadvocate #chronicillnessawarenes #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport  #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel
I feel like a human Tic Tac Box 🫢😂 . . #epil I feel like a human Tic Tac Box 🫢😂
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#epilepsy #epilepsyawareness #chronicillnessadvocate #chronicillnessawarenes #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport  #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel
Epilepsy can throw some curveballs, but with the r Epilepsy can throw some curveballs, but with the right mindset and support, you can handle it like a pro. 😉

These tips have helped me find balance and take control of my journey. Swipe for tips on navigating life and making it work for you! 🙌🏼
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#epilepsy #epilepsyawareness #fearlesslyfightingepilepsy #chronicillness #epilepsycommunity #invisibleillness #spooniesupport #raiseawarenessofepilepsy#tiffanytalksepilepsy
Cozy just got an upgrade! As a proud hoodie girl, Cozy just got an upgrade! As a proud hoodie girl, I thought I’d seen it all—until @gianthoodies sent me their oversized hoodie made of the softest, plush fabric imaginable. Let me tell you, this isn’t just a hoodie—it’s a wearable hug that beats out every hoodie in my collection! 😻

I get cold easily, so this will be my go-to for surviving winter. Whether I’m enjoying a rest day, recovering after a seizure, or simply embracing my homebody vibes, this hoodie wraps me in ultimate comfort. It’s like lounging in a cloud!

Plus, Giant Hoodies offers a variety of colors, styles, and even customizable options, so there’s something for everyone. Seriously, click their name and check them out—I highly recommend snagging one for yourself (or a gift for a fellow hoodie lover)! Thank you, @GiantHoodies, for sending me my new winter essential. ❄️🖤
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#reels #newreels #newreel #advocatealways #epilepsyawarenessmonth #epilepsy #epilepsyawareness #GiantHoodies #catmom #comfyhoodie #musthave #highlyrecommended
Cheers to another amazing month of epilepsy awaren Cheers to another amazing month of epilepsy awareness, warriors! 🙌🏼

Let’s keep going and going and going! ✊🏼💜

Thank you to everyone who showed up in support! 👏🏼
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#epilepsy #epilepsyawareness #chronicillnessadvocate #chronicillnessawarenes #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport  #spooniesisterhood #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel #advocatealways #epilepsyawarenessmonth
Ativan knocks me out 😴😴😴 . . #epilepsy #e Ativan knocks me out 😴😴😴
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#epilepsy #epilepsyawareness #chronicillnessadvocate #chronicillnessawarenes #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport  #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel #epilepsyawarenessmonth #ativan #rescuemedication
This little girl had no idea what life had in stor This little girl had no idea what life had in store for her. She couldn’t have imagined that in 20 years, she’d be diagnosed with epilepsy—a condition that would bring its share of challenges, battles, and lessons.

But what she also couldn’t foresee is how those challenges would shape her into the person she is today: an advocate raising awareness, supporting others around the world, and proving that life’s toughest moments can lead to incredible purpose. ❤️
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#epilepsy #epilepsyawareness #fearlesslyfightingepilepsy #chronicillness #epilepsycommunity #invisibleillness #spooniesupport #raiseawarenessofepilepsy #tiffanytalksepilepsy #epilepsyawarenessmonth
🍁 Support system 🍁 Advocacy 🍁 Medication 🍁 Support system
🍁 Advocacy
🍁 Medication options
🍁 Attentive and supportive doctors
🍁 Access to resources
🍁 Small victories 
🍁 The Epilepsy Community

Happy Thanksgiving everyone! 🍽️🦃
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#epilepsy #epilepsyawareness #chronicillnessadvocate #chronicillnessawarenes #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport  #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel #epilepsyawarenessmonth #thanksgiving #happythanksgiving
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Disclaimer

This blog is not here to replace medical advice from trained professionals.

Please seek medical advice.

This blog serves to offer my personal experience with epilepsy, what has worked for me, encouragement and support.

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