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  • woman at the beach

    When They Say “I Don’t Know How You Do It” Living with Epilepsy

    June 17, 2020 / No Comments

    Living with epilepsy is not a walk in the park. It’s a daily challenge. Not only physically, but emotionally and spiritually. The condition stretches you to your breaking point, like…

    By Tiffany Kairos
  • teapot

    How I Upcycle Epilepsy in My Life

    May 28, 2020 / No Comments

    “If you give up, you’ll have an attitude of resignation, of defeat that will affect—and infect—the rest of your life. Acceptance is empowering because it’s a choice you’ve made. Even…

    By Tiffany Kairos
  • Motherhood

    Epilepsy and the Dream of Motherhood

    May 9, 2020 / 4 Comments

    I’d always wanted to be a mother. At the age of nine on my birthday, I didn’t ask for barbies or make-up. I didn’t ask for glittery toys, no. Instead…

    By Tiffany Kairos
  • speech bubble

    You Don’t Look Like You Have Epilepsy

    April 24, 2020 / 5 Comments

    I live with Epilepsy. I have lived with this condition for over a decade. I was diagnosed with this condition in 2008. Four short months after marrying my husband. I…

    By Tiffany Kairos
  • Woman in a wheat field

    10 Things to Remember When Epilepsy Walks Into Your Life

    April 1, 2020 / No Comments

    When epilepsy walks into your life, it’s as if a tornado has unexpectedly tossed about your entire life and you’re left to pick up the pieces and rebuild. For some,…

    By Tiffany Kairos
  • Coronavirus

    How I Navigate My Epilepsy Self-Care During Coronavirus

    March 27, 2020 / 2 Comments

    Self-care is an important component of all-around wellness when you have a chronic illness. For example, epilepsy. But suppose an unanticipated situation shakes up your everyday self-care routine. How do…

    By Tiffany Kairos
  • Person being angry

    5 Things Not to Be Angry At Living with Epilepsy

    March 4, 2020 / 1 Comment

    Becoming diagnosed with epilepsy is a life-altering event. Epilepsy does not care your age, your race or time within your life. This condition can happen to anyone. Some are welcomed…

    By Tiffany Kairos
  • Mental health

    How to Protect Your Mental Health While Living with Epilepsy

    February 15, 2020 / No Comments

    What Is Mental Health? Mental health includes our emotional, psychological, and social well-being. It affects how we think, feel, and act. It also helps determine how we handle stress, relate…

    By Tiffany Kairos
  • Don’t Feel Sorry For Me Because I Have Epilepsy

    February 7, 2020 / 2 Comments

    It’s never easy when someone that you know or someone that you love has just been diagnosed with a chronic illness. What can you say to show that you care…

    By Tiffany Kairos
  • How I Practice Self-Renewal While Living With Epilepsy

    February 3, 2020 / No Comments

    What is self-renewal? In reflecting on this, it’s looking at life anew, or maybe even sewing the seeds of things that you’ve been meaning to do for a while. Self-renewal…

    By Tiffany Kairos
  • What Epilepsy Reminds Me

    January 29, 2020 / 3 Comments

    Over a decade. It has been a long journey and within this journey, I have learned so much, experienced so much, wrestled so many emotions, have had the opportunity to…

    By Tiffany Kairos
  • 6 Ugly Sides of Epilepsy Most People Don’t Like Talking About

    January 7, 2020 / 6 Comments

    It’s no secret that having a chronic illness sucks. There are sides to having epilepsy that are ugly or not well studied, and many people don’t know about them at…

    By Tiffany Kairos
  • Survival kit

    8 Essentials In My Epilepsy Survival Kit

    December 12, 2019 / No Comments

    Living with epilepsy can be taxing not only on the body but also the mind and spirit. Finding the right things to make the journey less rigorous is therapeutic. What…

    By Tiffany Kairos
  • Memory

    5 Ways I Improve My Memory While Living With Epilepsy

    October 8, 2019 / 2 Comments

    “Memory loss is like system reboot.” Memory hindrances. A topic that I’ve discussed lightly over the course of my journey with epilepsy. Is it a mere coincidence or has my…

    By Tiffany Kairos
  • Intimacy

    Breaking the Ice on Intimacy and Epilepsy

    September 25, 2019 / 2 Comments

    Yep, I’m going there. That awkward, not-often talked about subject coupled with epilepsy. When epilepsy and seizures decide to kill the mood for intimacy in a relationship. Sometimes we might…

    By Tiffany Kairos
  • Road

    The Road Doesn’t End Here

    September 18, 2019 / 1 Comment

    One of the most difficult challenges since my diagnosis with epilepsy is finding reliable means of transportation. Sure. I have my husband and members of family who extend their willingness…

    By Tiffany Kairos
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About Me

Tiffany Kairos

Hi there! I'm an epilepsy patient advocate, blogger, content creator and the founder of The Epilepsy Network (TEN). Within this blog I talk about my experience with epilepsy, also providing tips, encouragement and motivation to live your best life while navigating epilepsy.

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Because epilepsy is my life 🤌🏼 . . #epilepsy Because epilepsy is my life 🤌🏼
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#epilepsy #epilepsyawareness #chronicillnessadvocate #chronicillnessawarenes #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport  #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel
✔️ “You’re handling this like a boss.”
✔️ “Your strength is seriously inspiring.”
✔️ “I’m here to back you up anytime.”
✔️ “You’re not alone in this—you’ve got me.”
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#epilepsy #epilepsyawareness #chronicillnessadvocate #chronicillnessawarenes #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport  #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel
I feel like a human Tic Tac Box 🫢😂 . . #epil I feel like a human Tic Tac Box 🫢😂
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#epilepsy #epilepsyawareness #chronicillnessadvocate #chronicillnessawarenes #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport  #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel
Epilepsy can throw some curveballs, but with the r Epilepsy can throw some curveballs, but with the right mindset and support, you can handle it like a pro. 😉

These tips have helped me find balance and take control of my journey. Swipe for tips on navigating life and making it work for you! 🙌🏼
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#epilepsy #epilepsyawareness #fearlesslyfightingepilepsy #chronicillness #epilepsycommunity #invisibleillness #spooniesupport #raiseawarenessofepilepsy#tiffanytalksepilepsy
Cozy just got an upgrade! As a proud hoodie girl, Cozy just got an upgrade! As a proud hoodie girl, I thought I’d seen it all—until @gianthoodies sent me their oversized hoodie made of the softest, plush fabric imaginable. Let me tell you, this isn’t just a hoodie—it’s a wearable hug that beats out every hoodie in my collection! 😻

I get cold easily, so this will be my go-to for surviving winter. Whether I’m enjoying a rest day, recovering after a seizure, or simply embracing my homebody vibes, this hoodie wraps me in ultimate comfort. It’s like lounging in a cloud!

Plus, Giant Hoodies offers a variety of colors, styles, and even customizable options, so there’s something for everyone. Seriously, click their name and check them out—I highly recommend snagging one for yourself (or a gift for a fellow hoodie lover)! Thank you, @GiantHoodies, for sending me my new winter essential. ❄️🖤
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#reels #newreels #newreel #advocatealways #epilepsyawarenessmonth #epilepsy #epilepsyawareness #GiantHoodies #catmom #comfyhoodie #musthave #highlyrecommended
Cheers to another amazing month of epilepsy awaren Cheers to another amazing month of epilepsy awareness, warriors! 🙌🏼

Let’s keep going and going and going! ✊🏼💜

Thank you to everyone who showed up in support! 👏🏼
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#epilepsy #epilepsyawareness #chronicillnessadvocate #chronicillnessawarenes #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport  #spooniesisterhood #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel #advocatealways #epilepsyawarenessmonth
Ativan knocks me out 😴😴😴 . . #epilepsy #e Ativan knocks me out 😴😴😴
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#epilepsy #epilepsyawareness #chronicillnessadvocate #chronicillnessawarenes #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport  #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel #epilepsyawarenessmonth #ativan #rescuemedication
This little girl had no idea what life had in stor This little girl had no idea what life had in store for her. She couldn’t have imagined that in 20 years, she’d be diagnosed with epilepsy—a condition that would bring its share of challenges, battles, and lessons.

But what she also couldn’t foresee is how those challenges would shape her into the person she is today: an advocate raising awareness, supporting others around the world, and proving that life’s toughest moments can lead to incredible purpose. ❤️
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#epilepsy #epilepsyawareness #fearlesslyfightingepilepsy #chronicillness #epilepsycommunity #invisibleillness #spooniesupport #raiseawarenessofepilepsy #tiffanytalksepilepsy #epilepsyawarenessmonth
🍁 Support system 🍁 Advocacy 🍁 Medication 🍁 Support system
🍁 Advocacy
🍁 Medication options
🍁 Attentive and supportive doctors
🍁 Access to resources
🍁 Small victories 
🍁 The Epilepsy Community

Happy Thanksgiving everyone! 🍽️🦃
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#epilepsy #epilepsyawareness #chronicillnessadvocate #chronicillnessawarenes #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport  #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel #epilepsyawarenessmonth #thanksgiving #happythanksgiving
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Disclaimer

This blog is not here to replace medical advice from trained professionals.

Please seek medical advice.

This blog serves to offer my personal experience with epilepsy, what has worked for me, encouragement and support.

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