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  • How to Educate Family and Friends About Epilepsy

    March 17, 2025 / No Comments

    Living with epilepsy can sometimes feel isolating, especially when your family and friends don’t fully understand what you’re going through. It’s important to create awareness and help your loved ones understand epilepsy better, not just for your benefit but for theirs too. When people are educated, it leads to a more supportive environment for you, and it helps reduce any confusion or fear when a seizure happens. Here are a few simple and helpful ways to educate your friends and…

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    Tiffany KairosTiffany Kairos
  • 5 Ways Endometriosis Impacted My Epilepsy

    January 1, 2025 / No Comments

    “Stick to just epilepsy content.” This is a message I received while talking about my experience with endometriosis and raising awareness for epilepsy. Little did they know, there is a…

    By Tiffany Kairos
  • 5 Ways to Prepare for the Holidays With Epilepsy

    December 5, 2024 / No Comments

    The holiday season is one that I enjoy very much – filled with joy, celebration, and time with loved ones. But as someone with epilepsy, it also comes with certain…

    By Tiffany Kairos
  • 10 Things To Know About My Life With Epilepsy

    September 17, 2024 / 2 Comments

    Living with epilepsy for over 15 years has shaped my journey in ways I could have never imagined. It’s easy for people to see the outward effects of seizures, but…

    By Tiffany Kairos
  • Epilepsy and Pregnancy: Tips To Prepare

    August 30, 2024 / No Comments

    I always dreamed of motherhood, but my life’s been full of other rewarding experiences. Instead, I’m a proud cat mom to two lively and lovely felines. My inability to become…

    By Tiffany Kairos
  • 10 Tips to Live Independently With Epilepsy

    August 8, 2024 / 1 Comment

    Living with epilepsy can sometimes feel next to impossible. But, guess what? Independence is absolutely achievable. Below I share some tips that have helped me live confidently and independently. 1.…

    By Tiffany Kairos
  • 5 Essential Steps After An Epilepsy Diagnosis

    July 12, 2024 / No Comments

    I’ve lived with epilepsy for over 15 years, and when I was first diagnosed, I had no idea what to do. I didn’t know anyone else with epilepsy, and it…

    By Tiffany Kairos
  • 9 Summer Essentials For Those With Epilepsy

    June 21, 2024 / No Comments

    Epilepsy can be challenging and we often look for products that make our lives easier and help us manage our symptoms. The summer season can be especially challenging for those…

    By Tiffany Kairos
  • 8 Must-Have Items For Epilepsy-Friendly Road Trips

    May 16, 2024 / No Comments

    Road trips can be fun and filled with exciting adventures! To avoid bumps in the road (pun intended), it’s important for people living with epilepsy to pack carefully and methodically.…

    By Tiffany Kairos
  • 4 Things I Wish I Knew When I Was Diagnosed With Epilepsy

    April 30, 2024 / 1 Comment

    I was diagnosed with epilepsy at the age of 22. It’s interesting when you’re diagnosed with an incurable and invisible illness that isn’t visible until a seizure occurs. While most…

    By Tiffany Kairos
  • The Ultimate Checklist For Your Epilepsy Doctor’s Visit

    April 1, 2024 / No Comments

    By preparing for your appointment, you can get all your questions and concerns answered. This is especially important when working with your doctor to get a diagnosis or develop a…

    By Tiffany Kairos
  • Page Turners: Exploring Epilepsy Through Books

    March 20, 2024 / No Comments

    Books have always been a part of my life. Whether exploring another world or improving my health and wellbeing. As a result of my epilepsy diagnosis, I became motivated to…

    By Tiffany Kairos
  • 4 Best Epilepsy Podcasts To Follow In 2024

    February 21, 2024 / No Comments

    Living with epilepsy has its challenges, but one thing that’s helped me feel connected and informed is tuning into podcasts. Whether I’m looking for tips on managing seizures or simply…

    By Tiffany Kairos
  • 4 Healthy Habits For Managing Epilepsy

    February 15, 2024 / 1 Comment

    Little things you do every day can have a big impact on your epilepsy. If you currently live with epilepsy, making certain lifestyle adjustments can help you manage your condition…

    By Tiffany Kairos
  • 8 Tips For Being Productive With Epilepsy

    January 22, 2024 / No Comments

    Living with epilepsy for 15 years has taught me valuable lessons about embracing productivity while managing this condition. Here are some personalized insights to help you have a fulfilling and…

    By Tiffany Kairos
  • Blog Roundup: Top 5 Articles of 2023

    December 28, 2023 / No Comments

    As we wrap up another incredible year on Rise Above Epilepsy, let’s highlight the top 5 articles that resonated with you, my faithful readers! The Ultimate Gift Guide – Gift…

    By Tiffany Kairos
  • Moonlit Melodies ReLeafpack: Bounce Back With This Cold Pack

    December 1, 2023 / No Comments

    Headaches…are a headache! They’re painful, terrible for your quality of life, and awful for productivity. Following a seizure, I experience terrible headaches known as postictal headaches. A postictal headache is…

    By Tiffany Kairos
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About Me

Tiffany Kairos

Hi there! I'm an epilepsy patient advocate, blogger, content creator and the founder of The Epilepsy Network (TEN). Within this blog I talk about my experience with epilepsy, also providing tips, encouragement and motivation to live your best life while navigating epilepsy.

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Because epilepsy is my life 🤌🏼 . . #epilepsy Because epilepsy is my life 🤌🏼
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#epilepsy #epilepsyawareness #chronicillnessadvocate #chronicillnessawarenes #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport  #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel
✔️ “You’re handling this like a boss.”
✔️ “Your strength is seriously inspiring.”
✔️ “I’m here to back you up anytime.”
✔️ “You’re not alone in this—you’ve got me.”
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#epilepsy #epilepsyawareness #chronicillnessadvocate #chronicillnessawarenes #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport  #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel
I feel like a human Tic Tac Box 🫢😂 . . #epil I feel like a human Tic Tac Box 🫢😂
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#epilepsy #epilepsyawareness #chronicillnessadvocate #chronicillnessawarenes #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport  #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel
Epilepsy can throw some curveballs, but with the r Epilepsy can throw some curveballs, but with the right mindset and support, you can handle it like a pro. 😉

These tips have helped me find balance and take control of my journey. Swipe for tips on navigating life and making it work for you! 🙌🏼
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#epilepsy #epilepsyawareness #fearlesslyfightingepilepsy #chronicillness #epilepsycommunity #invisibleillness #spooniesupport #raiseawarenessofepilepsy#tiffanytalksepilepsy
Cozy just got an upgrade! As a proud hoodie girl, Cozy just got an upgrade! As a proud hoodie girl, I thought I’d seen it all—until @gianthoodies sent me their oversized hoodie made of the softest, plush fabric imaginable. Let me tell you, this isn’t just a hoodie—it’s a wearable hug that beats out every hoodie in my collection! 😻

I get cold easily, so this will be my go-to for surviving winter. Whether I’m enjoying a rest day, recovering after a seizure, or simply embracing my homebody vibes, this hoodie wraps me in ultimate comfort. It’s like lounging in a cloud!

Plus, Giant Hoodies offers a variety of colors, styles, and even customizable options, so there’s something for everyone. Seriously, click their name and check them out—I highly recommend snagging one for yourself (or a gift for a fellow hoodie lover)! Thank you, @GiantHoodies, for sending me my new winter essential. ❄️🖤
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#reels #newreels #newreel #advocatealways #epilepsyawarenessmonth #epilepsy #epilepsyawareness #GiantHoodies #catmom #comfyhoodie #musthave #highlyrecommended
Cheers to another amazing month of epilepsy awaren Cheers to another amazing month of epilepsy awareness, warriors! 🙌🏼

Let’s keep going and going and going! ✊🏼💜

Thank you to everyone who showed up in support! 👏🏼
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#epilepsy #epilepsyawareness #chronicillnessadvocate #chronicillnessawarenes #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport  #spooniesisterhood #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel #advocatealways #epilepsyawarenessmonth
Ativan knocks me out 😴😴😴 . . #epilepsy #e Ativan knocks me out 😴😴😴
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#epilepsy #epilepsyawareness #chronicillnessadvocate #chronicillnessawarenes #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport  #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel #epilepsyawarenessmonth #ativan #rescuemedication
This little girl had no idea what life had in stor This little girl had no idea what life had in store for her. She couldn’t have imagined that in 20 years, she’d be diagnosed with epilepsy—a condition that would bring its share of challenges, battles, and lessons.

But what she also couldn’t foresee is how those challenges would shape her into the person she is today: an advocate raising awareness, supporting others around the world, and proving that life’s toughest moments can lead to incredible purpose. ❤️
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#epilepsy #epilepsyawareness #fearlesslyfightingepilepsy #chronicillness #epilepsycommunity #invisibleillness #spooniesupport #raiseawarenessofepilepsy #tiffanytalksepilepsy #epilepsyawarenessmonth
🍁 Support system 🍁 Advocacy 🍁 Medication 🍁 Support system
🍁 Advocacy
🍁 Medication options
🍁 Attentive and supportive doctors
🍁 Access to resources
🍁 Small victories 
🍁 The Epilepsy Community

Happy Thanksgiving everyone! 🍽️🦃
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#epilepsy #epilepsyawareness #chronicillnessadvocate #chronicillnessawarenes #invisibleillnesses #invisibleillnesswarrior #invisibleillnesswarrior #TiffanyTalksEpilepsy #spooniesupport  #spooniewarrior #spooniecommunity #spoonielife #thisisepilepsy #spooniestrong #reelgrowth #epilepsyadvocate #reels #newreels #newreel #epilepsyawarenessmonth #thanksgiving #happythanksgiving
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  • 5 Ways Endometriosis Impacted My Epilepsy
  • 5 Ways to Prepare for the Holidays With Epilepsy

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Disclaimer

This blog is not here to replace medical advice from trained professionals.

Please seek medical advice.

This blog serves to offer my personal experience with epilepsy, what has worked for me, encouragement and support.

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